If you’ve been reading my muses and blog posts for any length of time, you have learned that I have Fibromyalgia. I thought I’d explain a little bit more about it because whenever I mention the Fibro, I receive requests for information about the symptoms.
My current symptom list includes:
- Muscle and body aches (sort of like you get at the beginning of a flu). This is my least-favorite symptom.
- Fatigue - the kind of fatigue that makes you feel like you are so tired you could cry. This isn’t a feeling of being tired because you’ve been extra busy, this is fatigue that runs through every pore. It’s the kind of fatigue that takes courage to work through. It’s always worse in the morning.
- Difficulties sleeping. It is common for someone with Fibromyalgia to have sleep disorders in which they don’t go into Stage 4 sleep. Your body rebuilds in Stage 4.
- Foggy thinking. This is commonly known as Fibro Fog. Your brain feels tired and it is hard to think. You can think, but it takes a great deal of effort.
- Sensitive to sound, light, and touch. When I’m having a Fibro flare, it is hard to find something comfortable to wear. This is one of the reasons I have an extensive wardrobe of stretchy exercise-type clothing. If I am having a very bad day, I stay in my nightgown.
My aggravating factors:
- Stress
- Having too much fun (vacations usually send me into a flare-up)
- Working too long for an extended period of time
- Getting sick in other ways
- Having my sleep disrupted for an extended period of time
- Trying to do too much
- Environmental issues
When I live a quieter life, I do better. As you might know by now, I am continually working on methods to handle stress more effectively. It’s a constant struggle because I like to be busy. I like to be involved. I like to interact with people. I love to be charged up with excitement.
In my pre-Fibro days, I was a whirlwind of activity. I ran from morning until night. I played in orchestras, did live theatre, sang in choirs, held complicated positions at church, taught music, cooked and baked, bottled and sewed. I felt great and rarely got sick.
Then I had Andrew and the shock of the difficult pregnancy and delivery seemed to activate something in my body and I came down with Fibromyalgia. That was 21 years ago.
The good thing: I’m used to it and know what is going on. I’m not afraid of what happens to me.
The bad thing: As hard as I might try, I cannot seem to reclaim my former busy-busy self. I have to tell myself, “It is what it is.”
The best thing: The Lord led me to a job that I can do within the confines of my Fibromyalgia. When I am having a bad day, I do less. When I am having a bad period, no one knows it is happening unless I tell them. When I am having a good stretch, I get as much done as I can. I appreciate feeling good and count those times as blessings.
Accepting myself is accepting my Fibromyalgia. It is relaxing into the confines of my experience so that I can learn. It is becoming brave enough to tell to people that I have Fibro so that they won’t think I am a flake when I have to beg out of certain activities. It is learning to say, “No, I can’t do that.” It is learning to not feel guilty that I have to say, “No, I can’t do that.”
My truth for today: I’m experiencing Fibro flare. I feel fairly lousy and I believe that after I get my office cleaned up so that I don’t feel confused to look at my piles of papers and books, I am going to do some of the reading I have been putting off.
I’m going to Be Me and be one with the Fibro.
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If you have more questions about the symptoms of Fibromyalgia, you can find lots of good information here.



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